Umbrella review

Parenting interventions for parents and caregivers of children and young people with disabilities

An umbrella review of parenting interventions for parents and caregivers of children and young people with disabilities

Summary

This protocol summarises plans for an evidence review of effective parenting interventions for parents and carergivers of children and young people aged 0–25 years with a range of disabilities, including those caused by severe mental illness.

Who, what, why and how?

The experience of raising children with disabilities highlights the benefits and potential challenges that can affect both caregiver and child.

Where challenges have been identified, targeted parenting interventions which aim to enhance parenting quality, and to support the wellbeing and development of children with disabilities, may be beneficial for some parents and caregivers. With about 11 percent of children considered disabled in the UK, there is a critical need for effective interventions to support parents and caregivers of children with disabilities.

Foundations has commissioned the Anna Freud Centre to conduct an evidence review of parenting interventions aimed at improving outcomes for parents and carers of children and young people aged up to 25 years old with disabilities, including disabilities caused by severe mental illness.

This evidence review will combine findings from existing systematic reviews and meta-analyses to quantify the impact of interventions on both child and parent/caregiver outcomes, including assessment of long-term effectiveness of the intervention. The evidence review will also pull together findings from existing studies that have explored the lived experiences of parents and caregivers accessing interventions, and the barriers and enablers to successful implementation of interventions.

Research Questions

The evidence review aims to answer the following research questions:

  • RQ1: What is the collective evidence from systematic reviews on the effectiveness of parenting interventions for parents and carers of children and young people with a range of disabilities, including those caused by severe mental illnesses, and what are the common outcomes and measures used to assess their impact?
  • RQ2a: What is the effectiveness of parenting interventions in improving outcomes for parents/caregivers and children and young people with a range of disabilities, including those caused by severe mental illness?
    RQ2b: How do outcomes of parenting interventions vary across different types of disabilities and different age groups (0–5, 6–12, 13–25) among children and young people?
  • RQ3a: What components of parenting interventions are statistically associated with greater effectiveness?
    RQ3b: How do specific components of parenting interventions contribute to positive outcomes for children and young people with disabilities and their parents or carers?
  • RQ4: What are the key features that are seen to support or limit engagement, acceptability and effectiveness, from the perspective of parents and caregivers?

Evaluation partners

Due Date

This project is due to be completed by January 2025.
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Umbrella review protocol: Parenting interventions for parents and caregivers of children & young people with disabilities

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